Tomorrow is Braeden's 6 month follow up appointment at Seattle Children's, with the Biomedical Genetics department. There is a possibility that he will get a clinical diagnosis for Ehlers-Danlos Syndrome tomorrow. There is also the possibility that they will have a different diagnosis for him, and/or a yes or no answer from insurance about testing the blood sample they took at the last appointment.
I'm asking for good thoughts and prayers for Braeden and I tomorrow. He will not have to undergo any more blood work, so this should be a needle-less visit for him. I'm hoping that my brain fog (I'm looking at you, stupid failing thyroid!) will clear enough for me to retain info, and ask good questions. These appointments are hard for me, so I'm also asking for the strength to NOT cry.
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